{"componentChunkName":"component---src-templates-blog-post-tsx","path":"/en/blog/2020/07/07/health-data-owning-your-own-reality/","result":{"data":{"blogPost":{"id":"8da1c6e8-7627-5785-9109-d21dd44409a0","slug":"health-data-owning-your-own-reality","published":"2020-07-07","title":"Health data - owning your own reality","author":"Hanna Blyckert","interviewer":null,"locale":"en","description":{"description":"Hanna Svensson has investigated how people with chronic diagnoses, such as rheumatoid arthritis, log health data, much like Elsa does."},"image":{"id":"7d5f0cf8-934f-5b08-8127-5d43fb9eb2f1","title":"hannas","file":{"url":"//images.ctfassets.net/ru4kvbqaspv6/17MXXDCMqQEFhCmMT84ndY/9bbaedaebfea8ebc12577217e5c3b417/hannas.png","contentType":"image/png","details":{"image":{"width":1024,"height":440}}}},"body":{"raw":"{\"nodeType\":\"document\",\"data\":{},\"content\":[{\"nodeType\":\"heading-1\",\"content\":[{\"nodeType\":\"text\",\"value\":\"Health data - owning your own reality\",\"marks\":[],\"data\":{}}],\"data\":{}},{\"nodeType\":\"heading-3\",\"content\":[{\"nodeType\":\"text\",\"value\":\"Hanna Svensson has written the “Health data from an individual and self-care perspective” report. This document examines how people with chronic diagnoses such as rheumatoid arthritis log their health data, much in the way the Elsa app works. She believes that the holistic perspective this health data can provide could lead to better healthcare and better patient outcomes.\",\"marks\":[],\"data\":{}}],\"data\":{}},{\"nodeType\":\"heading-2\",\"content\":[{\"nodeType\":\"text\",\"value\":\"Who are you?\",\"marks\":[],\"data\":{}}],\"data\":{}},{\"nodeType\":\"paragraph\",\"content\":[{\"nodeType\":\"text\",\"value\":\"My name is Hanna Svensson, I have a degree in technical physics and I have been working for a couple of weeks now on quality measurement at Rise. Previously I worked as a consultant in development. My objective when speaking and writing in the healthcare sector is to highlight the patient perspective. I also give lectures and run workshops on data in healthcare, self-care and patient co-creation. I have about 30 years of experience in type 1 diabetes and two years of experience in rheumatoid arthritis (RA).\",\"marks\":[],\"data\":{}}],\"data\":{}},{\"nodeType\":\"paragraph\",\"content\":[{\"nodeType\":\"text\",\"value\":\"I have been living with type 1 diabetes since I was very small. I started measuring my blood sugar once or twice a day, but now I measure it 240 times a day. Taking my own measurements in everyday life has always been important to me. For three years now I have also been living with Rheumatoid Arthritis (RA).\",\"marks\":[],\"data\":{}}],\"data\":{}},{\"nodeType\":\"paragraph\",\"content\":[{\"nodeType\":\"text\",\"value\":\"I have always been interested in technology and mathematics, and have researched how things work in society. I trained as an engineer in technical physics and have worked in many different areas. Since I had been collecting my own data for so long, I wanted to explore the concept of health data. How could it work for people with conditions where things are not as easy to measure as a diabetic? Since I developed RA, it has become an even more important issue for me, so I decided to dig deeper into health data. \",\"marks\":[],\"data\":{}}],\"data\":{}},{\"nodeType\":\"heading-2\",\"content\":[{\"nodeType\":\"text\",\"value\":\"What is health data?\",\"marks\":[],\"data\":{}}],\"data\":{}},{\"nodeType\":\"paragraph\",\"content\":[{\"nodeType\":\"text\",\"value\":\"Health data is information that relates to the health of a person or a group of people. It can include personal measurements and estimates, but also external data such as weather. Examples of a value could include your blood pressure or body temperature, and examples of an estimate could include how tired or stiff you feel.\",\"marks\":[],\"data\":{}}],\"data\":{}},{\"nodeType\":\"paragraph\",\"content\":[{\"nodeType\":\"text\",\"value\":\"A majority of people who collect their health data do so to try to achieve a healthier lifestyle or prevent unwanted health conditions. People who collect their health data are generally health-conscious and want to improve their quality of life in different ways.\",\"marks\":[],\"data\":{}}],\"data\":{}},{\"nodeType\":\"heading-2\",\"content\":[{\"nodeType\":\"text\",\"value\":\"Report on health data\",\"marks\":[],\"data\":{}}],\"data\":{}},{\"nodeType\":\"paragraph\",\"content\":[{\"nodeType\":\"text\",\"value\":\"Hanna Svensson’s report aims to increase the profile of health data and shed light on self-collected health data from an individual perspective. It describes what self-collected health data is, and how it can be structured. The focus is on people with long-term or chronic conditions. \",\"marks\":[],\"data\":{}}],\"data\":{}},{\"nodeType\":\"paragraph\",\"content\":[{\"nodeType\":\"text\",\"value\":\"The study examined a number of articles on self-care and health care. The articles on self-care describe the importance of measuring and logging the factors that are important to the individual, and the usefulness of this data during meetings with healthcare professionals. Having data to hand helps both people with chronic conditions and their healthcare professionals to see the relationship between symptoms, side effects, treatment and lifestyle. There were also disadvantages, including the difficulty of analyzing data and the time-consuming logging process. \",\"marks\":[],\"data\":{}}],\"data\":{}},{\"nodeType\":\"paragraph\",\"content\":[{\"nodeType\":\"text\",\"value\":\"Nine people have been interviewed about what self-collected health data means to them and the different variables they log. The study identified 72 different variables within self-collected health data.\",\"marks\":[],\"data\":{}}],\"data\":{}},{\"nodeType\":\"paragraph\",\"content\":[{\"nodeType\":\"text\",\"value\":\"The survey was answered by 188 people, about half of whom had one or more chronic diseases. More than half collected health data about themselves daily or several times a day. Among those who had received a chronic diagnosis, about a third said they collected data to supplement the health care they receive.\",\"marks\":[],\"data\":{}}],\"data\":{}},{\"nodeType\":\"heading-2\",\"content\":[{\"nodeType\":\"text\",\"value\":\"What insights did the report give?\",\"marks\":[],\"data\":{}}],\"data\":{}},{\"nodeType\":\"paragraph\",\"content\":[{\"nodeType\":\"text\",\"value\":\"What I found exciting was that some people had come up with their own test procedures to estimate different things. They want to make things more quantifiable and find clearer ways of seeing that symptoms or flare-ups were on their way.\",\"marks\":[],\"data\":{}}],\"data\":{}},{\"nodeType\":\"paragraph\",\"content\":[{\"nodeType\":\"text\",\"value\":\"The big problem is how to record, save and store your health data. It’s hard work, and that means it’s difficult to do properly. They used different mobile apps, activity meters and other types of digital tools. Elsa is an alternative that really helps people collect their RA data in one place.\",\"marks\":[],\"data\":{}}],\"data\":{}},{\"nodeType\":\"heading-2\",\"content\":[{\"nodeType\":\"text\",\"value\":\"Why is it good to have your own health data?\",\"marks\":[],\"data\":{}}],\"data\":{}},{\"nodeType\":\"paragraph\",\"content\":[{\"nodeType\":\"text\",\"value\":\"Firstly, to make your annual visit to the doctor easier when they ask you ‘how are you feeling?’. It is a complex question, you don’t always remember, and the answer varies over time. It is simply difficult to summarize in a few sentences. If I have saved information I can show them about my symptoms, my measurements and things like how tired I felt or how much pain I was in, I can see the patterns clearly and it’s easier to answer that question.\",\"marks\":[],\"data\":{}}],\"data\":{}},{\"nodeType\":\"paragraph\",\"content\":[{\"nodeType\":\"text\",\"value\":\"Personally, I think it is interesting and fun to analyze data. It’s a new perspective on my \\\"involuntary hobby\\\". I know it’s not so much fun for everyone, but it can still create a feeling of having more control than I think most people like. I like being able to see in black and white that I experienced something, that I can look back in time and draw my own conclusions. I can own my reality a little more.\",\"marks\":[],\"data\":{}}],\"data\":{}},{\"nodeType\":\"heading-2\",\"content\":[{\"nodeType\":\"text\",\"value\":\"What are you interested in measuring yourself?\",\"marks\":[],\"data\":{}}],\"data\":{}},{\"nodeType\":\"paragraph\",\"content\":[{\"nodeType\":\"text\",\"value\":\"In terms of my own illness, I am most interested in how my RA affects my diabetes. There is not much research on how these diseases affect each other, and my doctors and other healthcare professionals usually refer me to each other. These are two common diseases and many people have both at the same time. But despite all that, there is no knowledge. \",\"marks\":[],\"data\":{}}],\"data\":{}},{\"nodeType\":\"paragraph\",\"content\":[{\"nodeType\":\"text\",\"value\":\"I think that when you focus on individual diagnoses, you end up going down certain well-trodden paths of thinking that treat each condition as separate. But that's not how we are as human beings: we are whole people. I think we need to look at what variables people with RA are looking at, but to get really good benefits you may need to look at other groups to find the connections.\",\"marks\":[],\"data\":{}}],\"data\":{}},{\"nodeType\":\"heading-2\",\"content\":[{\"nodeType\":\"text\",\"value\":\"What do you imagine health data being used for in the future?\",\"marks\":[],\"data\":{}}],\"data\":{}},{\"nodeType\":\"paragraph\",\"content\":[{\"nodeType\":\"text\",\"value\":\"I own my health data. It gives me better control and understanding of my illness and increases my awareness of it. I believe that using the overall perspective on health and feelings will become more common in the future, instead of simply focusing on curing symptoms. I see that both private and common health data will be part of the shift to a holistic perspective, and that it will help many find ways to feel better. \",\"marks\":[],\"data\":{}}],\"data\":{}},{\"nodeType\":\"embedded-entry-block\",\"content\":[],\"data\":{\"target\":{\"sys\":{\"id\":\"1722081YI2m0N28mGQkezo\",\"type\":\"Link\",\"linkType\":\"Entry\"}}}},{\"nodeType\":\"paragraph\",\"content\":[{\"nodeType\":\"text\",\"value\":\"\",\"marks\":[],\"data\":{}}],\"data\":{}}]}","references":[{"__typename":"ContentfulBlogPostDownloadCta","contentful_id":"1722081YI2m0N28mGQkezo","text":{"raw":"{\"nodeType\":\"document\",\"data\":{},\"content\":[{\"nodeType\":\"heading-2\",\"content\":[{\"nodeType\":\"text\",\"value\":\"More in Elsa!\",\"marks\":[],\"data\":{}}],\"data\":{}},{\"nodeType\":\"paragraph\",\"content\":[{\"nodeType\":\"text\",\"value\":\"Are you interested in getting more knowledge, inspiration and tips?  If you have not already downloaded the Elsa app, you can do it here.\",\"marks\":[],\"data\":{}}],\"data\":{}}]}"}}]},"blog":[{"blogPosts":[{"id":"7b67a24f-788f-5729-9a30-45cd8adc5980","title":"\"Activity and Recovery are key\"","published":"2020-01-28","slug":"activity-and-recovery-are-key"},{"id":"fe4c8aa5-8b7d-5ae7-85f0-46b7d8838de8","title":"Every activity counts!","published":"2020-02-25","slug":"every-activity-counts"},{"id":"2bd1a7aa-c65a-517b-8c62-69263b36d956","title":"Stopping smoking cuts the risk of RA","published":"2019-10-15","slug":"stopping-smoking-cuts-the-risk-of-ra"},{"id":"4ccdaa4a-dee1-52a6-bea0-af569712ac4d","title":"Treatment reduces cancer risk in rheumatism","published":"2020-05-05","slug":"treatment-reduces-cancer-risk-in-rheumatism"},{"id":"6be892e0-21b7-5a60-b1f9-f733b5b7abb1","title":"“It’s important to see children’s illness”","published":"2020-05-26","slug":"its-important-to-see-childrens-illness"},{"id":"e6b7a347-3c8b-54ca-8445-ad9a1c511889","title":"Support for your self-care","published":"2020-01-07","slug":"support-for-your-self-care"},{"id":"5d4582e3-29d6-5508-9aaf-a8da4517a2c4","title":"Is there a link between RA and thyroid disease?","published":"2020-04-15","slug":"is-there-a-link-between-ra-and-thyroid-disease"},{"id":"683810a6-2330-5071-847f-154eb58083e9","title":"Good sleep can help people with RA","published":"2019-12-17","slug":"good-sleep-can-help-people-with-ra"},{"id":"582a3423-b23a-51b7-8e07-1e150f666590","title":"\"Do something fun, even if you're in pain\"","published":"2020-01-14","slug":"do-something-fun-even-if-youre-in-pain"},{"id":"5ccbba72-ad98-5513-9aed-5f862420b4b1","title":"Hemmaträning!","published":"2020-03-24","slug":"hemmatraning"},{"id":"260a5f55-1720-5953-97ae-4400e9f87e5b","title":"Information regarding the new coronavirus and covid-19","published":"2020-03-20","slug":"information-regarding-the-new-coronavirus-and-covid-19"},{"id":"74eb45de-78b3-506d-b753-434a4a253ff6","title":"\"No questions are silly questions in doctor visits\"","published":"2020-02-18","slug":"no-questions-are-silly-questions-in-doctor-visits"},{"id":"4802c348-d985-5ebf-8e21-ecaf89d2abf9","title":"Data collection should provide knowledge about covid 19 and rheumatic disease","published":"2020-05-19","slug":"data-collection-should-provide-knowledge-about-covid-19-and-rheumatic-disease"},{"id":"f47a0fe9-f8bd-5acf-a671-ad791d824443","title":"Get started with meditation and mindfulness","published":"2020-06-02T09:00+02:00","slug":"get-started-with-meditation-and-mindfulness"},{"id":"7cdad1ca-2fc4-5261-9118-727d4fd1394d","title":"\"Chronic pain needs to be thought of as a disease in itself\"","published":"2020-04-01","slug":"chronic-pain-needs-to-be-thought-of-as-a-disease-in-itself"},{"id":"3276687b-1e08-5d3d-9e8a-5c38ee1c8562","title":"Prescriptions for physical activity!","published":"2020-02-06","slug":"prescriptions-for-physical-activity"},{"id":"abb83f28-d0d9-54f0-b086-dd12f4d5839f","title":"Handle stress and feel better","published":"2020-05-12","slug":"handle-stress-and-feel-better"},{"id":"b428847d-d964-591c-a4fb-6513d56f5f44","title":"Create habits with inner motivation","published":"2020-01-22","slug":"create-habits-with-inner-motivation"},{"id":"94dd9a37-c168-5fbf-9365-5d0e671140a4","title":"Träna hemma med Träning på Recept och Elsa!","published":"2020-03-30","slug":"trana-hemma-med-traning-pa-recept-och-elsa"},{"id":"84ab6c2b-eecb-5fd4-a1e4-42005cc52ff1","title":"Young Rheumatists lets the patient be heard!","published":"2020-03-17","slug":"young-rheumatists-lets-the-patient-be-heard"},{"id":"3488ce78-eec5-5ecf-b388-7e97956a4c3c","title":"Health care should focus on health, not just illness","published":"2020-02-11","slug":"health-care-should-focus-on-health-not-just-illness"},{"id":"0837f722-8eba-51b5-bef9-3d65f801e9fe","title":"\"Be nice to yourself and take the time to get used to your new life\"","published":"2020-04-07","slug":"be-nice-to-yourself-and-take-the-time-to-get-used-to-your-new-life"},{"id":"17b52ae2-9896-54bb-84b9-f6165dae5a6b","title":"\"We help each other and get stronger together\"","published":"2020-03-03","slug":"we-help-each-other-and-get-stronger-together"},{"id":"dd07a266-13c0-5241-b9e1-29534c5120c6","title":"Yoga as a treatment for long-term pain","published":"2020-04-21","slug":"yoga-as-a-treatment-for-long-term-pain"},{"id":"bb2edee1-f2d0-5037-9146-230f32f2a149","title":"Take a culture pill - feel better!","published":"2019-12-10","slug":"take-a-culture-pill-feel-better"},{"id":"467bdc72-65ed-5203-9699-44f210697bef","title":"Healthcare has a lot to learn from people with long-term pain","published":"2019-12-03","slug":"healthcare-has-a-lot-to-learn-from-people-with-long-term-pain"},{"id":"f9ee672e-8806-5ef3-91f4-e0f418857103","title":"“Luckily I was born stubborn”","published":"2019-11-26","slug":"luckily-i-was-born-stubborn"},{"id":"bad2d855-0ecd-5a3b-a27a-98cda2a9e4fb","title":"Digital test for joint pain","published":"2019-11-19","slug":"digital-test-for-joint-pain"},{"id":"de453375-a0a3-5942-99eb-48275ba714dc","title":"Will RA be curable in the future?","published":"2019-11-12","slug":"will-ra-be-curable-in-the-future"},{"id":"cd169413-625a-53a0-8a0d-dc653f962aed","title":"New diet study for children with rheumatism","published":"2019-11-05","slug":"new-diet-study-for-children-with-rheumatism"},{"id":"e0b09c61-3542-5fb8-b7ca-9ca07667fdc8","title":"Vetenskapliga livsstilsråd på webben!","published":"2019-10-29","slug":"vetenskapliga-livsstilsrad-pa-webben"},{"id":"56b35462-674d-5d35-bd05-08944dd749ce","title":"Dust from some jobs can increase the risk of RA","published":"2019-10-22","slug":"dust-from-some-jobs-can-increase-the-risk-of-ra"},{"id":"40221b85-6a07-5825-a716-62cda57045c8","title":"Science and balance in life to deal with RA","published":"2019-10-08","slug":"science-and-balance-in-life-to-deal-with-ra"},{"id":"4560697b-aefd-5dd4-a8fd-9862517cd55d","title":"Food from the sea can make people with rheumatic conditions feel better","published":"2019-10-01","slug":"food-from-the-sea-can-make-people-with-rheumatic-conditions-feel-better"},{"id":"1bdd18bf-20f3-5eb6-b206-719984996aa8","title":"Kvalitativa studier fångar framsteg för personer med RA","published":"2019-09-24","slug":"kvalitativa-studier-fangar-framsteg-for-personer-med-ra"},{"id":"a11d2de0-82af-51e8-9bb2-c80c2c1073b8","title":"New research says nature is key to good health","published":"2019-09-17","slug":"new-research-says-nature-is-key-to-good-health"},{"id":"257c3ee6-cffb-565a-b098-7eb7051fa372","title":"“Only now do I realize how sick I was”","published":"2019-09-10","slug":"only-now-i-do-realize-how-sick-i-was"},{"id":"951c85fd-fcbb-5a16-b459-ea914d9467f3","title":"Yoga yourself better!","published":"2019-09-03","slug":"yoga-yourself-better"},{"id":"d968ba8e-760d-55f2-b39f-a88b7dc2c84b","title":"“Now I know RA is manageable”","published":"2019-08-27","slug":"now-i-know-ra-is-manageable"},{"id":"93377c7a-1c34-58d8-8e5e-49cd6215134a","title":"Lars Klareskog: \"We want to prevent RA from breaking out\"","published":"2019-08-20","slug":"lars-klareskog-we-want-to-prevent-ra-from-breaking-out"},{"id":"18d36ac8-26f9-56ce-9629-06389feb4525","title":"What should people with RA eat?","published":"2019-08-13","slug":"what-should-people-with-ra-eat"},{"id":"dd3624d1-2cf1-55af-97ee-9dc1397859b0","title":"\"My loved ones have given me the power not to be so affected by the disease\"","published":"2019-08-06","slug":"my-loved-ones-have-given-me-the-power-not-to-be-so-affected-by-the-disease"},{"id":"4b9dbced-e44e-51a8-a4c5-557a7236ef0f","title":"Podd-tips! Reumapodden om RA","published":"2019-07-23","slug":"podd-tips-reumapodden-om-ra"},{"id":"32c9b879-f1f4-52c0-8fe4-f2314c0ff882","title":"Brain strong - Book tips from Elsa!","published":"2019-07-16","slug":"brain-strong-book-tips-from-elsa"},{"id":"3c90c646-edd7-538d-ae08-498a9ecffa89","title":"Find your own strategies for feeling good!","published":"2019-07-09","slug":"find-your-own-strategies-for-feeling-good"},{"id":"fe33236c-4b8e-5de7-8a87-16444f859b04","title":"How should it feel when I exercise?","published":"2019-07-02","slug":"how-should-it-feel-when-i-exercise"},{"id":"3c7a184c-0489-5dc1-a59d-747654aa0e8b","title":"\"What, you're not sick, are you?\"","published":"2019-06-25","slug":"what-youre-not-sick-are-you"},{"id":"40b4a4fd-8d05-5dcc-8afe-fd22aa45ee1d","title":"Living with fatigue","published":"2019-06-17","slug":"living-with-fatigue"},{"id":"6576ce12-9021-5419-9bb0-7a59e6ed9195","title":"What is an autoimmune disease?","published":"2019-06-12","slug":"what-is-an-autoimmune-disease"},{"id":"9043e4ee-db20-5271-b45e-a2c00424e2ba","title":"RA and physical activity","published":"2019-06-05","slug":"ra-and-physical-activity"},{"id":"13adfc97-ca56-5796-a321-446b095bb9cd","title":"Exercise just as important for people with RA - at least! ","published":"2019-06-04","slug":"exercise-just-as-important-for-people-with-ra-at-least"},{"id":"9a416971-d2d5-50b2-a799-e01b448e3258","title":"How the immune system and inflammation work","published":"2019-05-28","slug":"how-the-immune-system-and-inflammation-work"},{"id":"5f378099-e462-59b0-9e77-a302dd83681c","title":"This is rheumatoid arthritis","published":"2019-05-27","slug":"det-har-ar-reumatoid-artrit"},{"id":"6b0b5771-7464-5dbf-bc4e-f380ac37301a","title":"\"People who use Elsa should feel that they are contributing to research\"","published":"2019-05-24","slug":"people-who-use-elsa-should-feel-that-they-are-contributing-to-research"},{"id":"7fa4659a-1947-58c6-b4ef-96c6fbbac2c8","title":"“The insights helped me create a healthier life”","published":"2020-06-02","slug":"the-insights-helped-me-create-a-healthier-life"},{"id":"41ccd823-8910-530d-8c79-1698c3fadb5b","title":"Research about exercise for the over 65s","published":"2020-06-16","slug":"research"},{"id":"8b318d61-7f61-5ab0-992d-6f9b0cf2e29a","title":"“I see my body in a whole new way”","published":"2020-06-23","slug":"i-see-my-body-in-a-whole-new-way"},{"id":"b09e9f08-1191-59dc-9121-2733ceb1c96f","title":"\"I want to get a sense of control\"","published":"2020-06-30","slug":"i-want-to-get-a-sense-of-control"},{"id":"ff2e67ff-6eda-5f55-9f15-3cd7b1532fd1","title":"More research for people with RA!","published":"2019-05-24","slug":"more-research-for-people-with-ra"},{"id":"8da1c6e8-7627-5785-9109-d21dd44409a0","title":"Health data - owning your own reality","published":"2020-07-07","slug":"health-data-owning-your-own-reality"},{"id":"9a1b34bb-76a4-5c37-ba2c-640953ff83f5","title":" \"Prioritize your inner health and dare to talk about it\"","published":"2020-07-14","slug":"prioritize-your-inner-health-and-dare-to-talk-about-it"},{"id":"a615a056-4700-5e67-b429-0a37e1af576e","title":"”I want to be able to do what I want”","published":"2020-07-21","slug":"i-want-to-be-able-to-do-what-i-want"},{"id":"608c0e36-6321-5637-885f-72873c3a0b91","title":"Adapt your life and cheat evolution","published":"2020-07-28","slug":"adapt-your-life-and-cheat-evolution"},{"id":"fc19158b-1f2b-5eee-b5cd-0609e44f0a67","title":"Train your brain to see the good things in life","published":"2020-08-04","slug":"train-your-brain-to-see-the-good-things-in-life"},{"id":"82a1862a-bcca-586a-ba68-64f6ee3eee2b","title":"Find your own strategies!","published":"2020-08-18","slug":"find-your-own-strategies"},{"id":"6efb5859-89ef-556e-97a6-2e6aed61cee7","title":"\"Make yourself stronger and get to know your body\"","published":"2020-08-11","slug":"make-yourself-stronger-and-get-to-know-your-body"},{"id":"7a0aebc6-5b49-599e-9bc2-42828dadd53b","title":"\"My RA will go alongside me, but on my terms\"","published":"2020-08-25","slug":"my-ra-will-go-alongside-me-but-on-my-terms"},{"id":"4cd979e2-0947-5553-ba85-74dfa4764608","title":"Emotions and pain affect each other","published":"2020-09-01","slug":"emotions-and-pain-affect-each-other"},{"id":"b9f8296b-9fe4-5b6a-b846-d8d632221ebc","title":"“Right now it’s about finding out what works”","published":"2020-09-08","slug":"right-now-its-about-finding-out-what-works"},{"id":"5aef9523-7d71-517c-9907-17138940d990","title":"A new study on relatives and people with RA: \"The best we have is each other\"","published":"2020-09-15","slug":"a-new-study-on-relatives-and-people-with-ra-the-best-we-have-is-each-other"},{"id":"820383d5-3837-5cc5-86d3-1d33aa490829","title":"\"It's just as well that we get to know each other and find a good way to work together.\"","published":"2020-09-22","slug":"its-just-as-well-that-we-get-to-know-each-other-and-find-a-good-way-to-work"},{"id":"02ffdc7b-d66a-5ad9-b06e-3ac71c56e64e","title":"Sibling study provides clues to the link between cardiovascular disease and RA","published":"2020-09-29","slug":"sibling-study-provides-clues-to-the-link-between-cardiovascular-disease-and-ra"},{"id":"9416822b-2657-5142-9309-e70f1e7606a8","title":"\"Other things have to work out, I need to prioritize myself now\"","published":"2020-10-06","slug":"other-things-have-to-work-out-i-need-to-prioritize-myself-now"},{"id":"9f6e7b14-3e55-5e3b-8808-b76d6f2bd03e","title":"Study will increase knowledge about living habits with RA","published":"2020-10-13","slug":"study-will-increase-knowledge-about-living-habits-with-ra"},{"id":"4f280e69-73d6-5fe9-a670-6ed0cae4cfbd","title":"\"Life's too short to feel bad if you can feel good\"","published":"2020-10-20","slug":"lifes-too-short-to-feel-bad-if-you-can-feel-good"},{"id":"3c79fca1-ed0f-57b5-92c2-8c458a547edc","title":"Reducing “brain fog” for people with RA","published":"2020-10-26","slug":"reducing-brain-fog-for-people-with-ra"},{"id":"caaa89d4-5a56-5819-a065-de0a438dedbd","title":"\"I have health, it just happens that I have a chronic disease\"","published":"2020-11-03","slug":"i-have-health-it-just-happens-that-i-have-a-chronic-disease"},{"id":"78423a88-404f-555a-b6e2-815b1ca580ca","title":"Keeping the person in focus - instead of the disease","published":"2020-11-10","slug":"keeping-the-person-in-focus-instead-of-the-disease"},{"id":"1aa0584a-71f8-58c6-b72d-caf9794ba047","title":"\"Together we are stronger\"","published":"2020-11-17","slug":"together-we-are-stronger"},{"id":"0781d11b-9d75-5965-bc49-4e9733a2bd36","title":"\"Dietary habits should last a lifetime\"","published":"2020-11-24","slug":"dietary-habits-should-last-a-lifetime"},{"id":"5f555fff-2688-5624-882e-2b804998f533","title":"“I feel I have found a balance”","published":"2020-12-01","slug":"i-feel-i-have-found-a-balance"},{"id":"c2a2e3f4-c7e8-57a2-a915-f90df6cb2255","title":"\"You can live a normal life\"","published":"2020-12-08","slug":"you-can-live-a-normal-life"},{"id":"a67330b0-b717-573c-b58c-fe362235a3f9","title":"Low COVID-19 risk for people with rheumatic diseases","published":"2020-12-15","slug":"low-covid-19-risk-for-people-with-rheumatic-diseases"},{"id":"9d2cfd91-932c-529e-b877-f22d1a106630","title":"Yoga and rheumatism","published":"2020-12-22","slug":"yoga-and-rheumatism"},{"id":"2cd0ca74-edb2-56eb-a133-11233250649c","title":"“The world turned upside down”","published":"2020-12-29","slug":"the-world-turned-upside-down"},{"id":"03e39a3a-e499-59aa-a373-1a09ccec5aaa","title":"\"The important thing is to create positive emotions\"","published":"2021-01-05","slug":"the-important-thing-is-to-create-positive-emotions"},{"id":"d6aae91d-66fa-5449-8d12-9608e258c176","title":"“Here you can talk to someone who isn’t too busy to listen”","published":"2021-01-12","slug":"here-you-can-talk-to-someone-who-isnt-too-busy-to-listen"},{"id":"72b7749f-93ed-584c-9142-a1ca202fd164","title":"Elsa tips! The Swedish Rheumatism Association's research report 2020","published":"2021-01-19","slug":"elsa-tips-the-swedish-rheumatism-associations-research-report-2020"},{"id":"cd4d598c-8f81-5a7e-a892-3310f0b30c82","title":"“It is vital we do more research on pregnancy with rheumatic diseases”","published":"2021-01-26","slug":"it-is-vital-we-do-more-research-on-pregnancy-with-rheumatic-diseases"},{"id":"e1949308-067f-5a26-ba22-50ba354e6fe1","title":"“The most important goal for me has been to maintain my quality of life”","published":"2021-02-02","slug":"the-most-important-goal-for-me-has-been-to-maintain-my-quality-of-life"},{"id":"2db4a75b-fee7-5bbf-9e01-51adb1e98823","title":"Five keys for increasing your strength","published":"2021-02-09","slug":"five-keys-for-increasing-your-strength"},{"id":"f7861f49-f22e-52e2-a94c-6f96abe2f7a2","title":"Raised body temperature in the feet of people with rheumatoid arthritis","published":"2021-02-16","slug":"raised-body-temperature-in-the-feet-of-people-with-rheumatoid-arthritis"},{"id":"e1e830a8-8e95-5418-a498-fac54e5f62c1","title":"“I focus on things I can do something about.”","published":"2021-02-23","slug":"i-focus-on-things-i-can-do-something-about"},{"id":"58d2e477-a33d-5461-9b7c-44f9e8451e86","title":"EULAR: Early and intensive treatment of rheumatoid arthritis reduces fatigue","published":"2021-03-02","slug":"eular-early-and-intensive-treatment-of-rheumatoid-arthritis-reduces-fatigue"},{"id":"8609c1c2-394a-5148-bf06-c8d9fc8dfcdf","title":"Study links RA to increased risk of diabetes","published":"2021-03-09","slug":"study-links-ra-to-increased-risk-of-diabetes"},{"id":"756768c4-fe61-5085-b65b-f49c9f11d190","title":"“My diagnosis became my new strength”","published":"2021-03-16","slug":"my-diagnosis-became-my-new-strength"},{"id":"9ba222fa-c288-5e8a-a461-fe138318f2c4","title":"Clever tricks to start exercising - and continuing with it","published":"2021-03-23","slug":"clever-tricks-to-start-exercising-and-continuing-with-it"},{"id":"7a7a125e-4c0a-5fbc-8a18-1e800514735b","title":"\"I might not be able to do everything that I want, but almost\"","published":"2021-03-30","slug":"i-might-not-be-able-to-do-everything-that-i-want-but-almost"},{"id":"d28841ee-f622-5c48-846c-da1b846088a4","title":"Tips from Elsa—workout at home","published":"2021-04-06","slug":"tips-from-elsa-workout-at-home"},{"id":"68c65c44-e050-5843-ac59-d8927103e3c6","title":"“Don’t let the diagnosis stop you if you want to get pregnant”","published":"2021-04-13","slug":"dont-let-the-diagnosis-stop-you-if-you-want-to-get-pregnant"},{"id":"74820abf-75f9-5443-af2b-9e2fd79296fa","title":"Recovery—a key to balance","published":"2021-04-20","slug":"recovery-a-key-to-balance"},{"id":"0e6c02d1-4daa-57b3-9727-55489f639b53","title":"It all changed when Göran started listening inwards","published":"2021-04-27","slug":"it-all-changed-when-goeran-started-listening-inwards"},{"id":"37bc4e30-6bc7-5b17-94f9-f0d614ab967d","title":"Covid vaccination and rheumatic disease—four things to consider","published":"2021-05-04","slug":"covid-vaccination-and-rheumatic-disease-four-things-to-consider"},{"id":"91f4acaa-dcaa-5f69-acf8-664a17f5a3e3","title":"Physical work makes Sara feel good","published":"2021-05-11","slug":"physical-work-makes-sara-feel-good"},{"id":"db317b98-751b-5a7a-b3ea-1c98c5cea08f","title":"Keeping Tabs on Flare-ups!","published":"2021-05-18","slug":"keeping-tabs-on-flare-ups"},{"id":"2de0a646-e984-5a44-9982-f52d033351ce","title":"The Psychology Behind Elsa","published":"2021-05-25","slug":"the-psychology-behind-elsa"},{"id":"4a246305-55d8-5273-adac-d9e57fb92178","title":"Keeping the Possibilities in Sight","published":"2021-06-08","slug":"keeping-the-possibilities-in-sight"},{"id":"ec6c9727-39db-5798-bb3a-2bde82c7098b","title":"Elsa—Behind the Scenes, part 1","published":"2021-06-15","slug":"elsa-behind-the-scenes-part-1"},{"id":"f765e5df-731e-5021-8cec-1140898f06ed","title":"“A dialogue with the patient can shorten the path to the right medication”","published":"2021-06-22","slug":"a-dialogue-with-the-patient-can-shorten-the-path-to-the-right-medication"},{"id":"aa3fec48-f83e-5fce-af6b-b5a845d32f52","title":"Nearest and Dearest—and Reasonably High Expectations","published":"2021-06-29","slug":"nearest-and-dearest-and-reasonably-high-expectations"},{"id":"c465769c-0bc2-52cb-953e-68ba8478bcd8","title":"What Does Your Activity Balance Look Like?","published":"2021-07-06","slug":"what-does-your-activity-balance-look-like"},{"id":"ab4c953c-06e1-5d4c-9b4a-6c4a94f123f5","title":"Exercise this Summer—From Zumba to Biking","published":"2021-07-13","slug":"exercise-this-summer-from-zumba-to-biking"},{"id":"87bb30ba-c046-5c5f-9f90-a38bd0f77cb1","title":"\"There is a difference between being healthy and feeling good\"","published":"2021-07-27","slug":"there-is-a-difference-between-being-healthy-and-feeling-good"},{"id":"8801b74d-b7f0-54bb-826d-eca966792a8b","title":"Summer tip part 1: Nab some “me time”!","published":"2021-07-01","slug":"sommartips-del-1-knyck-lite-extra-egentid"},{"id":"652b58d3-bf42-507b-8f2f-5420cd701d6f","title":"Summer tip part 2: Icing and cooling for hot days!","published":"2021-07-08","slug":"summer-tip-part-2-icing-and-cooling-for-hot-days"},{"id":"c4e8d901-1343-59f4-acb7-f48935c1dd5a","title":"Summer tip part 3: The summer under your feet and as a pillow","published":"2021-07-15","slug":"summer-tip-part-3-the-summer-under-your-feet-and-as-a-pillow"},{"id":"31717287-6d79-505b-a81c-684f0c66d6bb","title":"Summer tip part 4: Level up your breakfast!","published":"2021-07-22","slug":"summer-tip-part-4-level-up-your-breakfast"},{"id":"a4e5e0b8-2deb-50b3-8092-2ca3f58a6c65","title":"Summer tip part 5: Bright and early – gives a bonus for the whole day","published":"2021-07-29","slug":"summer-tip-part-5-bright-and-early-gives-a-bonus-for-the-whole-day"},{"id":"5edcc2d2-4299-5d3d-97b2-250a923be09c","title":"Summer tip part 6: Meet Tzatzikis good good friend –  Skordalia","published":"2021-08-05","slug":"summer-tip-part-6-meet-tzatzikis-good-good-friend-skordalia"},{"id":"eb08326a-f0d4-55f1-b0b0-3947e376d672","title":"Elsa—Behind the Scenes, Part 2","published":"2021-07-20","slug":"elsa-behind-the-scenes-part-2"},{"id":"00985200-1ced-5d91-964c-70c88ba561e6","title":"Life Hacks for More Everyday Movement","published":"2021-08-03","slug":"life-hacks-for-more-everyday-movement"},{"id":"40f08790-506e-5e9b-a1bd-9768ad1f161d","title":"Setting Your Exercise Goals","published":"2021-08-10","slug":"setting-your-exercise-goals"},{"id":"a2ec884f-556b-5e3e-9972-e495da11563d","title":"Summer tip part 7: What would you like to share from your week?","published":"2021-08-12","slug":"summer-tip-part-7-what-would-you-like-to-share-from-your-week"},{"id":"1b7cba6f-24e2-5c3f-936b-db61c4f59ef2","title":"Summer tip part 8: “Stand floating” on the water?","published":"2021-08-19","slug":"summer-tip-part-8-stand-floating-on-the-water"},{"id":"01099919-b483-5af9-8ad3-0c34aa930c38","title":"Elsa—Behind the Scenes, Part 3","published":"2021-08-24","slug":"elsa-behind-the-scenes-part-3"},{"id":"0a1dc6be-3daa-5533-9384-141e84915554","title":"“I’m a classic case of all-or-nothing”","published":"2021-09-08","slug":"im-a-classic-case-of-all-or-nothing"},{"id":"d5566552-77ae-5bb2-ab07-9900f7183dce","title":"One should eat—but what?","published":"2021-09-21","slug":"one-should-eat-but-what"},{"id":"4fc73c0a-2703-50db-93da-bdc36a6c3d6b","title":"Elsa—Behind the Scenes, Part 4","published":"2021-10-05","slug":"elsa-behind-the-scenes-part-4"},{"id":"69e273cc-8f17-5a50-943a-2d25c6741695","title":"Nature and the arts for your health’s sake","published":"2021-10-19","slug":"nature-and-the-arts-for-your-healths-sake"},{"id":"9c2f4ff2-5bc7-56a9-85a5-c5159917e472","title":"New research about the influence of stress on RA disease activity","published":"2021-11-09","slug":"new-research-about-the-influence-of-stress-on-ra-disease-activity"},{"id":"cab033ee-76a6-587c-8cd3-85c1d3776a10","title":"Why are women more susceptible to autoimmune diseases? ","published":"2021-12-07","slug":"why-are-women-more-susceptible-to-autoimmune-diseases"},{"id":"c7a625c4-a8ad-5c14-b768-fa16091260d5","title":"Recent studies link gut bacteria to RA development and severity","published":"2022-01-04","slug":"recent-studies-link-gut-bacteria-to-ra-development-and-severity"},{"id":"9afc580c-aeee-57ff-b48e-d07873aa07f0","title":"Re-discoveries about RA and the role of oral health","published":"2022-02-01","slug":"re-discoveries-about-ra-and-the-role-of-oral-health"},{"id":"617c6a00-814d-5705-83cb-3c23e461585d","title":"e-Rheumatology – tomorrow’s care","published":"2022-03-01","slug":"e-rheumatology-tomorrows-care"},{"id":"50d351d5-5964-5ee7-9f7f-43473c9ffb9e","title":"“My experience as a patient is useful during every shift”","published":"2022-03-29","slug":"my-experience-as-a-patient-is-useful-during-every-shift"},{"id":"7851dc9e-5f02-50b6-aaf9-71aa05b2181d","title":"The Pain Forecast","published":"2022-04-26","slug":"the-pain-forecast"},{"id":"92965c56-9d58-5391-93b5-050ead3a8667","title":"How did COVID-19 affect people with rheumatic disease?","published":"2022-05-25","slug":"how-did-covid-19-affect-people-with-rheumatic-disease"},{"id":"5239a170-2bb8-5897-9926-952e442ef026","title":"Log your days regularly and feel better!","published":"2023-02-14","slug":"log-your-days-regularly-and-feel-better"},{"id":"ecd969fe-57bb-59e8-924b-17218562a6ac","title":"What is the point of being an active patient?","published":"2023-02-28","slug":"what-is-the-point-of-being-an-active-patient"},{"id":"b7b607ae-4607-5897-b35f-3b19836ee01f","title":"Different types of medications —do you know what is what?","published":"2023-03-14","slug":"different-types-of-medications-do-you-know-what-is-what"},{"id":"97c4b174-eeca-5ca3-af32-21cbeebbdf99","title":"It’s not always easy to interpret symptoms","published":"2023-03-28","slug":"its-not-always-easy-to-interpret-symptoms"},{"id":"755a2e89-f06e-59e4-80dc-8eb03806e8c4","title":"Being the one to say no","published":"2023-04-11","slug":"being-the-one-to-say-no"},{"id":"da03f285-9225-5e8c-ad78-0f99f4690806","title":"Give your mental health some love","published":"2023-04-25","slug":"give-your-mental-health-some-love"},{"id":"d6fd955d-69db-5112-b589-0fb4c4777989","title":"Are you worried about side effects?","published":"2023-05-09","slug":"are-you-worried-about-side-effects"},{"id":"106ae4a9-8575-55ac-a8bb-6dee34c2487b","title":"A smoother and smarter healthcare","published":"2023-05-23","slug":"a-smoother-and-smarter-healthcare"},{"id":"1349b27f-b06d-5422-8890-201d320ffe1e","title":"Common beliefs about rheumatic conditions","published":"2023-06-06","slug":"common-beliefs-about-rheumatic-conditions"},{"id":"4507b955-ef86-5e14-bba1-f7be60ecb98d","title":"Crash course for people around you","published":"2023-06-20","slug":"crash-course-for-people-around-you"},{"id":"a251b232-3837-5cab-b01f-36a4a08dcaa6","title":"Let vacation be vacation","published":"2023-07-04","slug":"let-vacation-be-vacation"},{"id":"8ae1854f-45ad-58c1-b8d0-b5ff6a2ab862","title":"Managing Flare-ups","published":"2023-07-18","slug":"managing-flare-ups"},{"id":"406aeb30-71b8-5d2d-97a5-d43e0ef732b8","title":"Tips and Tricks — Exercising!","published":"2023-08-01","slug":"tips-and-tricks-exercising"},{"id":"1042af34-d008-592a-b2f7-7d1be5239ff0","title":"A key to balance","published":"2023-08-15","slug":"a-key-to-balance"},{"id":"6804719c-b321-5fac-b9cf-951ebe9f2a3c","title":"How are things at work?","published":"2023-08-29","slug":"how-are-things-at-work"},{"id":"09f8933c-0044-5388-bbe4-5aa67e256f00","title":"How resilient are you?","published":"2023-09-12","slug":"how-resilient-are-you"},{"id":"a6530e9b-b127-55f9-b670-fdbc1b7eeb35","title":"Rethink self-care!","published":"2023-09-26","slug":"rethink-self-care"}]}]},"previousBlogPost":{"id":"b09e9f08-1191-59dc-9121-2733ceb1c96f","published":"2020-06-30","slug":"i-want-to-get-a-sense-of-control","title":"\"I want to get a sense of control\""},"nextBlogPost":{"id":"9a1b34bb-76a4-5c37-ba2c-640953ff83f5","published":"2020-07-14","slug":"prioritize-your-inner-health-and-dare-to-talk-about-it","title":" \"Prioritize your inner health and dare to talk about it\""},"page":{"path":"blog"},"siteConfig":{"id":"db7f6164-1fe5-5979-b676-5e50ef6d9466","siteName":"Elsa","locale":"en","logo":{"id":"8dd898bc-e078-5284-90b7-94f790e87da0","title":"Elsa Logotyp","file":{"url":"//images.ctfassets.net/6n7bn0w3ssps/4JZ0nY2EmrEc5Fsy40kHVj/e792d2aa9f756de94152937049803668/Logo_____Elsa_Science.svg","contentType":"image/svg+xml","details":{"image":{"width":138,"height":63}}}},"headerMenu":{"id":"a83567ef-b7fa-594c-8d99-8f73d2ddda87","links":[{"type":"ContentfulPage","id":"e63315eb-a125-5696-9276-15a16b9b34b7","title":"Find Your Path in Life with Rheumatic diseases","headerLabel":"Home","path":null},{"type":"ContentfulPage","id":"7c0c302c-18d5-50c1-8cf6-961c0bc0d994","title":"Your Data","headerLabel":null,"path":"your-data"},{"type":"ContentfulPage","id":"d8cc6ed2-efbb-5e77-b1a3-2baa78fe09cc","title":"Blog","headerLabel":"Blog","path":"blog"},{"type":"ContentfulPage","id":"a517b674-d2e2-59a2-a381-219d9bf18013","title":"For Health-Care","headerLabel":"For Health-Care","path":"for-healthcare"},{"type":"ContentfulLink","id":"d758ae2f-3e48-5198-a013-f1037883f58e","title":"News","url":"https://medium.com/@elsascience"},{"type":"ContentfulLink","id":"785428de-cf29-56a2-8f45-789c2c741e6c","title":"Careers","url":"https://careers.elsa.science/"},{"type":"ContentfulPage","id":"a8f74836-5a36-5cc2-b844-ac9bf6289031","title":"About Us","headerLabel":"About Us","path":"about-elsa"}]},"footerMenus":[{"id":"7174b50c-a206-5cce-b05c-30e706cd9fd5","links":[{"type":"ContentfulLink","id":"6b1b0ea6-bea9-50bd-ae73-421979bd8d3f","title":"Facebook","url":"https://www.facebook.com/ElsaScience.International"},{"type":"ContentfulLink","id":"36892ea5-8c4b-532f-8961-991c17f0dba9","title":"Instagram","url":"https://www.instagram.com/elsascience.international/"},{"type":"ContentfulLink","id":"c3f2262c-106e-5937-8c13-1c9ec81be962","title":"LinkedIn","url":"https://www.linkedin.com/company/elsascience/"},{"type":"ContentfulLink","id":"e0158b8f-e297-5d28-86ba-44a937a95f26","title":"Twitter","url":"https://twitter.com/elsascience?lang=en"},{"type":"ContentfulSeparator","id":"802a6bb6-734c-52e2-bf39-89cb7f8b5cc5"},{"type":"ContentfulPage","id":"7b6a2bfe-3322-5ae8-8668-c4da715023bd","title":"Privacy Policy","headerLabel":null,"path":"privacypolicy"},{"type":"ContentfulPage","id":"232f693d-0fe3-52c9-83aa-3b6b7c5bb004","title":"Terms of Service","headerLabel":null,"path":"terms-of-service"}]}],"footerCopy":{"type":"ContentfulCopy","locale":"en","id":"27c39eb2-6e9f-5ea1-a0a2-01c55cfd182d","contentful_id":"5hVD4YN48n6esn5C4xv87y","body":{"raw":"{\"nodeType\":\"document\",\"data\":{},\"content\":[{\"nodeType\":\"paragraph\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"The Elsa Science app is a CE marked medical device that is registered with the Swedish Medical Products Agency.\",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"paragraph\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"Elsa is being co-developed by people living with a chronic disease, health-care providers, scientific researchers and the life science industry. If you have any questions or feedback, please feel free to contact \",\"marks\":[],\"data\":{}},{\"nodeType\":\"hyperlink\",\"data\":{\"uri\":\"mailto:hello@elsa.science\"},\"content\":[{\"nodeType\":\"text\",\"value\":\"hello@elsa.science\",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"text\",\"value\":\"\",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"paragraph\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"Elsa Science AB\\nVästmannagatan 4\\n111 24 Stockholm\\nSweden\",\"marks\":[],\"data\":{}}]},{\"nodeType\":\"paragraph\",\"data\":{},\"content\":[{\"nodeType\":\"text\",\"value\":\"© 2023 Elsa Science AB\",\"marks\":[],\"data\":{}}]}]}","references":[]},"cssClasses":null},"cookieConsentMessage":"🍪 This website uses cookies to measure and improve quality and performance.","cookieConsentAgreeButton":"Accept","privacyPolicyPage":{"title":"Privacy Policy","path":"privacypolicy"}},"alternatePage":{"path":"/sv/blogg/2020/07/07/halsodata-att-aga-sin-egen-verklighet/","context":{"locale":"sv"}}},"pageContext":{"locale":"en","pageId":"d8cc6ed2-efbb-5e77-b1a3-2baa78fe09cc","contentfulId":"2PfiszCUiEnDlUd6cGTvQs","isBlogIndexPage":false,"canonicalPath":"/en/blog/2020/07/07/health-data-owning-your-own-reality/","blogPostId":"8da1c6e8-7627-5785-9109-d21dd44409a0","previousBlogPostId":"b09e9f08-1191-59dc-9121-2733ceb1c96f","nextBlogPostId":"9a1b34bb-76a4-5c37-ba2c-640953ff83f5","baseBlogPath":"/en/blog/"}},"staticQueryHashes":["3128451320"]}